Muscular Dystrophy Muscle Walk - Team Bee The Swarm
Spinraza Helps Young Woman Participate in Muscle Walk — and She Thinks You Should, Too
" Fourteen years ago, when I was four years old, my parents will recall the worst day of their lives. It was then that they learned of my rare, genetic and, at that time, untreatable disease, spinal muscular atrophy. From there it was a spiral into the unknown, as they had only known of muscular dystrophy through the Jerry Lewis telethons and were anxious with questions about my future and aptitude for a fulfilling life. To ease their minds, my parents were lucky enough to find assistance with the Massachusetts MDA office. Their guidance left my parents with the promise that despite my disability, I would find success in life, even if I navigated the world from a different perspective.
As I grew older and established my identity, MDA had my back at every step to ensure that I would find confidence in my uniqueness. Because of MDA, I have learned the value of leadership, wearing many hats at my school, in my community and in my hospital without fear of the limitations that my wheelchair presented. I have been graced with opportunities from MDA, whether it be New England Sports Network interviews during Bruins games, a profile on a national telethon, going to MDA Firefighter Bootcamp as a guest speaker, or sitting among Boston athletes at the annual Muscle Team event. Alongside these opportunities were medical investments funded by MDA, such as the MDA Care Center at Boston Children’s Hospital. I was able to receive wraparound care at the MDA Care Center, specifically for spinal muscular atrophy patients. "
This is who we are walking for,
I'm participating in [EventName] on [EventStartDate]. I've committed to raising awareness and funds to help MDA free individuals — and the families who love them — from the harmful effects of muscular dystrophy, ALS and related life-threatening diseases.
You can help in three ways:
1. Join me in the fight against muscular dystrophy and walk with me. (For more details see below)
MDA Muscle Walk of Denver
Great Lawn Park, Denver, CO
June 9, 2018 | 10:00 a.m.
Contact: Marissa Briceno
303-691-3331 | firstname.lastname@example.org
2. Help me reach my fundraising goal by donating your bees to our campaign on the swarm feed!