Little Fighter Lincoln

Lincoln was born May 23rd 2015 with Noonan Syndrome (NS) where his complex medical care began. He was immediately airlifted to our children's hospital and spent many days in NICU/PICU. Since birth, he has spent over 70 days impatient and counting, not to mention the 3-4 medical appointments and therapies he attends a week. Next on the list is open heart surgery, after dozens upon dozens of pokes, tests, exams, assessments and 3 surgeries later.

This syndrome has affected Lincoln in many ways: he has 4 heart defects, renal defects, breathing difficulties, growth issues and is exclusively tube fed. Lincoln's intellectual deficits are unknown, and he still requires a few surgeries. Despite this, he is a spunky, happy, cute little boy who never gives up.

"Lincoln recently received a new mickey/gtube. He has started taking purees through it and is tolerating it well so far! We have 2 heart procedures scheduled for the end of the month in Edmonton, quite the drive especially for the boys! Praying it goes well so we can prolong open heart surgery. Thank you all for your amazing ongoing support."

"Lincoln recently received a new mickey/gtube. He has started taking purees through it and is tolerating it well so far! We have 2 heart procedures scheduled for the end of the month in Edmonton, quite the drive especially for the boys! Praying it goes well so we can prolong open heart surgery. Thank you all for your amazing ongoing support."

Unfortunately, most of his clinics and specialists reside 6 hours round trip to our children's hospital, a 6 hour round trip from home. His parents (and 2.5 year old big brother) spend much time apart in order to properly care and advocate for Mister Lincoln. Caring for Lincoln's complex medical care is very expensive, unfortunately many costs are not covered by our disability services.

Mom spends most of her time out of town for appointments or in doctors offices while dad holds the fort at home with big brother after a recent lay off. Lincoln's immune system is very poor, and illness is devastating, so child care is not an option for either boys. Keeping a stable income has been near impossible for both parents due to the complexity of care.

Lincoln is loved by many, and lots of friends and family are cheering him on near and far. His medical journey has only begun and with much left to overcome and many hurdles to pass. His future is unknown but he is surrounded by so much love that surely he will thrive.

For the next 2 days, all revenue from ZomBees will go towards Lincoln's GoFundMe campaign to help cover Lincoln's medical expenses. To learn more about Noonan Syndrome, visit their website at teamnoonan.org.

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